OT: (or not?) What is the best PHR Personal Health Record service?

[Michael Butash]

That's actually rather cool that someone started diy to move off the 
commercial platforms, and actually seems reasonably mature.  I noticed 
their "backups and high-availability" noticeably absent an entry though.

Sad part is to Joe's dilemma is likely every system's schema is 
proprietary, and not in any exchangeable format.  I could be mistaken 
here, as .gov threw all kinds of money at them to go EMR - I'd love to 
think there was some kind of discussion of format interop set as a 
condition, but I doubt it.  Where's the profit in that?  You'd likely 
still get a flippin' printout vs. a thumbdrive file to plug in to 
someone else.

As said, it's pulling teeth to get the info out of hospitals or doctors, 
and generally I've just had doctors "start over" when I have moved or 
changed pcp's vs. that.  As I get older and health problems start, 
having that data to model over the past 20 years would likely be nice. 
You'd be lucky to get 10yr out of somewhere, and never get to enter it 
all to be somewhere useful.

If you were healthy, you wouldn't be a good return customer.

-mb


On 03/13/2013 04:20 PM, Dazed_75 wrote:
> Just saw this and thought you might be interested:
>
> http://opensource.com/health/13/3/interview-luis-falcon-gnu-health
>
> On Wed, Mar 13, 2013 at 3:25 PM, <joe at actionline.com
> <mailto:joe at actionline.com>> wrote:
>
>      > The biggest problem in my mind for such things is not the security
>      > though that is important.
>      >
>      > The biggest problem is getting the information to be actually used
>      > by medical personnel.
>
>     Excellent point ... and the reason why I believe everyone should and
>     can (to a much greater extent) take control of their own medical
>     history information.
>
>     A PHR may not be a perfect solution, but I believe it surely can be
>     a step in the right direction.
>
>     Once I get mine set up, when anyone asks me to fill out the same
>     medical history information again, I'll just email or fax or show
>     them on my tablet where that information already exists online. ;)
>
>     And when they ask the same questions that have already been
>     answered, I'll just point to the answer that has already been
>     provided (perhaps multiple times) on my tablet ;)
>
>
>
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